Dylan started to do some independent walking all around the house a few days before Christmas Eve, it was so exciting! He was walking back and forth to us and just walked right out of the room! In the weeks to follow he is still doing this when he feels like it, he still hasn't pulled up to stand from the middle of the room yet, so we think when he can do that he will be a full time walker - but in the meantime, this is still great progress!
His left eye would turn sometimes and he would get a blank stare from time to time, since the DAN protocol this hardly ever happens anymore. His eyes look good and he seems more alert.
He can get up and down off of the living room furniture and off of the dining room chair by himself!
Third Appointment:
On January 15th 2008 we went in to get a couple test results and to decide what steps to take next, the test results showed that his calcium level already went up by 50%! But he was now low in Selenium, so we are adding that to the supplement schedule.
His white blood cell count was low - not alarmingly but something to keep an eye on.
We decided to finish up the Nystatin and then start ThreeLac (a natural probiotic/yeast fighter) this will also eliminate the ProBio Gold for now. He will start 3 Zinc capsules a day instead of the 2 and we will step the Actos up to 3/4 tablet, and Carnitine to 1 full capsule, we will also start giving the MB12 shots every other day.
We had to weigh our options, Chelation vs HBOT first - and we decided (due to unpredictable weather) that we would do Chelation first. So we will be starting that next week. We are starting with a very gentle natural chelator TTFD (a form of vitamin B1) because Dylan is still so low in minerals and some of the more effective forms of chelating can pull minerals with the metals and we don't want to alter our progress or have Dylan regress. If this form is ineffective or causes severe rashing we will move onto another one. This is a topical chelator in the form of a cream that will be applied to the skin - we hear it is not so good as far as smell goes (sort of rubber like) so we'll see.
We plan to start HBOT in March - when the weather is more predictable and we know we can make it 3X a week. (20 sessions are recommended at 1 hour intervals, 3X a week)
So far, things are going good, he is tolerating everything and making slow and steady progress.
His left eye would turn sometimes and he would get a blank stare from time to time, since the DAN protocol this hardly ever happens anymore. His eyes look good and he seems more alert.
He can get up and down off of the living room furniture and off of the dining room chair by himself!
Third Appointment:
On January 15th 2008 we went in to get a couple test results and to decide what steps to take next, the test results showed that his calcium level already went up by 50%! But he was now low in Selenium, so we are adding that to the supplement schedule.
His white blood cell count was low - not alarmingly but something to keep an eye on.
We decided to finish up the Nystatin and then start ThreeLac (a natural probiotic/yeast fighter) this will also eliminate the ProBio Gold for now. He will start 3 Zinc capsules a day instead of the 2 and we will step the Actos up to 3/4 tablet, and Carnitine to 1 full capsule, we will also start giving the MB12 shots every other day.
We had to weigh our options, Chelation vs HBOT first - and we decided (due to unpredictable weather) that we would do Chelation first. So we will be starting that next week. We are starting with a very gentle natural chelator TTFD (a form of vitamin B1) because Dylan is still so low in minerals and some of the more effective forms of chelating can pull minerals with the metals and we don't want to alter our progress or have Dylan regress. If this form is ineffective or causes severe rashing we will move onto another one. This is a topical chelator in the form of a cream that will be applied to the skin - we hear it is not so good as far as smell goes (sort of rubber like) so we'll see.
We plan to start HBOT in March - when the weather is more predictable and we know we can make it 3X a week. (20 sessions are recommended at 1 hour intervals, 3X a week)
So far, things are going good, he is tolerating everything and making slow and steady progress.
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